our policies

Mustard Seed Autism Trust CIO is committed to protecting the families we support and their data, please read our policies below and contact us if you have any questions or concerns.


Privacy Notice – for families

Why do we process your child’s information?

The data we hold is used to process information about the children who receive our
occupational therapy services and all other services provided by Mustard Seed
Autism Trust CIO.

What is the lawful basis for the processing your information?

We gain parents or guardians consent for us to use data about their children through this Consent form.

The children’s’ data is required for us to deliver appropriate services to them, without which we would not be able to assess or treat or support their needs.

What information on your child do we obtain?

All data obtained about the children we deliver services to is either provided by:
parents or guardians, County Councils or NHS, third parties where the parents or
guardians have consented to the exchange of data for the benefit of treating their

Who might get to see the personal data held?

The recipients of personal data are the parents or guardians of the children we treat, County Councils, NHS, and any other parties we are authorised by the parent/guardian to share this data with.

How long is the personal data kept for?

Due to the assessments we complete and the developmental and medical information we are collecting we are legally required to keep paper-based and electronic data until the child’s 25th birthday.

What are my rights regarding the processing of this information?

Parents or guardians have a right to access data held about their child. This will be provided electronically in one or more ‘zip’ files within one month of a request being made.

The right to withdraw consent:

The “right to be forgotten” policy does not apply to children’s data under HCPC
legislation even where they cease to be a client. Data must be retained until the
child’s 25th birthday.

The right to lodge a complaint with a supervisory authority:
Parents or Guardians are entitled to lodge a complaint with the ICO (ico.org.uk) if they perceive data about their children has not been managed according to GDPR.


Privacy Notice – for Volunteers, supporters and donors

We value the support of all of our volunteers and donors and hold personal information to help us in this task. We are committed to respecting your privacy and keeping your personal information secure. This privacy notice tells you how Mustard Seed Autism Trust is meeting its data protection obligations.

We do not share your information with other organisations, unless legally required to do so.

If at any time you no longer wish to hear from us, please call us on 07980636413 or email us: office@mustardseedautism.co.uk

The sort of information that we collect and store includes:

  • Your name and contact information – address, email, landline/mobile number.
  • Your bank account and Gift Aid details if you donate by direct transfer.
  • Your position within the organisation, if relevant.
  • Event attendance information.
  • Volunteering information.

Our lawful basis for collecting personal information

All organisations are required to have a lawful basis for collecting and processing personal information. Our lawful basis for collecting data is your consent and that you have been involved in our projects, volunteered or donated money to us in the past.

We process this information under the Data Protection Act 2018 and the UK GDPR regulation (also known as the General Data Protection Regulation or GDPR) which covers the protection of individuals and the use and protection of personal information.

Why we collect and use this information

We use personal information to:

  • Send out our newsletters about our events and projects.
  • Send you fundraising appeals and record your donations and Gift Aid information.
  • Send correspondence relevant to your involvement with Mustard Seed Autism Trust.
  • Keep a record of the correspondence you have sent to us.

Storing this information

We hold your personal information in a secure database accessible only to employees and volunteers trained in data protection.


Requesting access to your personal data

Under data protection legislation, you have the right to request access to the personal information we hold about you. To request your personal information, please contact office@mustardseedautism.co.uk

You also have the right:

  • To see a copy of the information we hold about you
  • To be informed how you can keep it up to date
  • To make changes to your information and how it is used
  • To request some or all of your information to be deleted
  • To be informed how the organisation is meeting its data protection obligations

If you have a concern about the way we are collecting or using your personal information, we ask that you raise your concern with us. Alternatively, you can contact the Information Commissioner’s Office at: ico.org.uk/concerns/

Changes to this notice:

We may make changes to this Privacy Notice and these will be published on our website.


-Email us for our complaints form: office@mustardseedautism.co.uk

– a paper copy is available to collect or be posted to you from our office at Odiham Cottage Hospital, Buryfields, Odiham, RG29 1NE

– link to the form here:

Safeguarding Children

If you would like a copy of our policy please email: office@mustardseedautism.co.uk